Pheochromocytomas and Paragangliomas (PPGL) are neuroendocrine tumours that are hard to treat once they have metastasised (spread throughout the body). All current treatments for metastatic PPGL are non-curative, and don’t target the molecular basis for the disease. Endocrinologist, Veronica Boyle is joined by medicinal chemist and researcher Dan Conole as they break down what pheos and paras are, and discusses a novel targeted therapeutic approach they are working on for succinate hydrogenase B (SDHB) mutated PPGL, which is highly prevalent in Māori PPGL patients. Through working with clinicians and NECNZ, they hope their research will lead to better outcomes for patients with SDHB mutated PPGL. ​

Recorded Zoom-In session from Neuroendocrine Cancer NZ - June 2022

A presentation from Dr Sandra Fitzgerald on research findings about improving monitoring people with neuroendocrine tumours (NET cancer).

Recorded Zoom-In session from Thursday 11 August, 2022. Dr Rachelle Steyn is a nuclear medicine specialist from South Africa, residing in Hawkes Bay, NZ. She travels to Auckland fortnightly to treat PRRT patients and is also a member of the national multidisciplinary team. Peptide Receptor Radionuclide Therapy (PRRT) is a type of internal radiotherapy. You might have it as a treatment for a neuroendocrine tumour (NET) that can't be removed or that has spread to other parts of the body and is causing symptoms. With thanks to Dr Rachelle Steyn for her time and commitment to supporting our NZ NET Cancer community.

Recorded Zoom-In session from July 2022. Hosted by Neuroendocrine Cancer NZ

Dr Jane Reeve breaks down the various types of scans a NET patient might encounter. Concludes with Q&A from patients.

Recorded from the NET Cancer Education Day, August 2021

Recorded from the NET Cancer Education Webinar, August 2021.

Recorded from the NET Cancer Education Day Webinar, August 2021.

Pre-recorded presentation for NET Cancer Education Day 2021 by dietitian, Olivia Cochrane.

Recorded from the NET Cancer Education Day Webinar - August 2021

'What is PRRT' Dr Jenny Davidson (Auckland DHB) Unicorn Foundation NZ, NET Education Day 2019 Friday 13th September, Holiday Inn, Auckland Airport

Imaging in Neuroendocrine Tumours, presented by Dr Jane Reeve (Auckland DHB) Unicorn Foundation NZ, NET Education Day 2019 Friday 13th September, Holiday Inn, Auckland Airport

'Treatment of NETs' presented by Dr Dean Harris (Canterbury DHB) Unicorn Foundation NZ, NET Education Day 2019 Friday 13th September, Holiday Inn, Auckland Airport

'Endocrine Testing and Treatment' Presented by Dr Veronica Boyle (Counties Manukau DHB) Unicorn Foundation NZ, NET Education Day 2019 Friday 13th September, Holiday Inn, Auckland Airport