Aotearoa’s NET community
You are not alone with NETs.
Free patient information, peer support and advocacy for New Zealanders affected by neuroendocrine cancer. Built by patients, for patients.
Matched Giving Month · 1–30 November
This November, every gift is matched.
Everything we do is free to anyone who needs it, and funded by people like you.
See how you can helpNew report
SCAN 2025: how New Zealand’s NET care compares with the world.
New Zealanders rarely pay for their care, and PRRT access is now among the best anywhere – but patients still wait longer and hear far less about clinical trials. 110 patients and 73 clinicians told us where we lead, and where we fall short.
How we help
Three pillars, every day, for the NET community.
We provide patient information, peer support and advocacy in Aotearoa New Zealand. All free. All grounded in lived experience.
Patient information
Plain-language guides, symptom toolkits and clinical PDFs written for newly diagnosed Kiwis and their whānau.
Browse the Knowledge HubPeer support
Connect with people who get it – patients, families and bereaved relatives – through Zoom catch-ups and one-to-one calls.
How we support youAdvocacy
We work with Pharmac, Te Whatu Ora and clinicians to improve diagnosis and access to treatment for NET patients.
How to get involvedWhat’s on
Coming up for the NET community.
Living with NETs – four-week course
Our supported group course runs over four consecutive Mondays, 9am – 11am, from 2 November. A warm, practical space to learn alongside others living with a NET diagnosis.
NET Research Day 2026
A day bringing New Zealand's neuroendocrine cancer researchers together – research talks, workshops, and an afternoon showcase that patients are welcome to join.
NET Research Showcase 2026
An open afternoon session: come along, meet the researchers working on neuroendocrine cancer in Aotearoa, and hear what's happening. Patients and whānau warmly welcome.
Patient stories
Real Kiwis. Real journeys. Shared so you don’t feel alone.
Patient stories
Chris's NET journey
Chris's NET cancer experience has created more upsides to his life than downsides. This is his story.
Read story →
Patient stories
John's story
John shares his experience of living with neuroendocrine cancer.
Read story →Patient stories
The twelve steps to my front door – Lou's NET story
Lou was tramping New Zealand's toughest Great Walks in March. By April, twelve steps to her front door were a struggle. A 15 cm pancreatic NET, a second tumour on her kidney, and the symptoms she had spent years putting down to menopause.
Read story →What your support makes possible
- 8
- Kiwis diagnosed with neuroendocrine cancer every week
- 350+
- New Zealanders with NETs we connect with each year
- Free
- Peer support and patient information, always
Stay connected
Monthly updates from the NET community.
Patient stories, new resources, advocacy wins and what’s happening across Aotearoa.
Read past issuesEvery gift this November is matched, dollar for dollar.
Give $50 and it arrives as $100. NECNZ is a registered charity (CC49802) – donations over $5 are eligible for a 33⅓% tax credit.